Showing posts with label #1 Baby Killer genetic disease disorder Joshua's Journey SMA spinal muscular atrophy MDA Research. Show all posts
Showing posts with label #1 Baby Killer genetic disease disorder Joshua's Journey SMA spinal muscular atrophy MDA Research. Show all posts

Saturday, December 19, 2015

Win A Play Station 4

Enter to win a BRAND NEW PlayStation 4 paired with the UNCHARTED: The Nathan Drake Collection 500GB Bundle by participating in a raffle on Sat., Dec. 19 at 2pm at LifeSouth Community Blood Centers, 4039 W. Newberry Road. Raffle tickets only cost $10 each.

You must be present to win, so bring out the family to enjoy FREE food, music and entertainment. Proceeds raised will further the causes of Joshua Joel SMA Life Inc. Learn more at www.jojosmalife.com.


Tuesday, December 1, 2015

'Tis The Season To Give, Make a Charitable Donation Today

Welcome to Joshua Joel SMA Life Inc.

Joshua Joel SMA Life, Inc.’s mandate is to campaign for funding for the advancement of a comprehensive research program and cure for Spinal Muscular Atrophy.  It is our purpose to help accelerate the development of a treatment for Spinal Muscular Atrophy (SMA), the number one genetic killer of infants and toddlers.
Imagine. For nine months, you eagerly await the arrival of your precious one. You dream of tea parties and baseball games. You dream of teaching - ways to tie shoelaces, ride a bike and kiss booboos to make everything alright. Can you imagine being robbed of these anticipated memories because your baby is born atrophied - unable to lift his/her head, unable to cry audibly and unable to speak your name, ever?

On June 2008, this hypothetical scenario became ‘all too real’ for Ian and Patrice Fletcher when they gave birth to Joshua Joel Fletcher. At three months old, Joshua was diagnosed with Spinal Muscular Atrophy (SMA). Approximately 1 in 6000 babies born are affected with SMA and about 7.5 million individuals are genetic carriers. Learn more about Joshua Joel SMA Life Inc and ways to advance SMA Research.
We are so thankful for your consideration of supporting Joshua Joel SMA Life Inc. We do not take your commitment lightly. Your commitment and donations will empower Joshua Joel SMA Life to do the following:
Advance SMA Care & Research
Increase Overall Awareness About SMA
Host Medical Education Seminars
Develop Local Community Initiatives
Sponsorship Information
Support JoJoSMALife Today
Copyright © 2015 Joshua Joel SMA Life Inc., All rights reserved.
You are receiving this email because you are partners, friends and family of Joshua Joel SMA Life Inc

Our mailing address is:
Joshua Joel SMA Life Inc.
PO Box 141833
Gainesville, FL  32614-1833

Wednesday, November 4, 2015

Belk's Charity Sales

Get a jump start on your Christmas shopping this Saturday, Nov. 7th at Belk's Charity Sale, 6 am - 10am at the Oaks Mall. You may purchase your $5 ticket in advance or from us at the door to enjoy savings up to 70% off. Order tickets by inboxing our FB page or emailing jojosmalife@gmail.com. 

For more information on sales items, visit http://www.belk.com/…/…/CharitySale/CharityDaySaleBrands.pdf